28-12-2016 01:23 PM
28-12-2016 01:23 PM
04-01-2017 03:04 PM
04-01-2017 03:04 PM
Gah @Twinsanity, how did you respond to your uncle?
The other day, I heard someone talking about individual choice in reference to mental illness. I, as gently as I could, attempted to explain, that mental illness is so much more complex than focusing on indivudal choice. I'm not sure it went down well...
I like what @Former-Member said a bit earlier about how to respond:
"im a great believer in learning to take a breath, resist the urge to say something or explain myself, and say nothing. It doesn't escalate the situation. The anger passes soon enough. And no harm done.
Keeping my big mouth shut is a skill that really needs a lot of thought and practice though, since the anger is now so close to the surface. PTSD, I find, is short-wick disease!"
23-08-2017 02:55 PM
23-08-2017 02:55 PM
Hello @Twinsanity, @Former-Member, @BlueBay, @PeppiPatty
Hello @Littletink_
23-08-2017 03:17 PM
23-08-2017 03:17 PM
Hi @Shaz51
how are you my friend?
23-08-2017 03:22 PM
23-08-2017 03:22 PM
hello @BlueBay
I am ok , how about you
18-10-2017 10:54 AM
18-10-2017 10:54 AM
Hi there,
This has been one of our longest surviving discussions. Sadly it's likely because we're able to relate to the expeirence!
This prompted us to create a blog for the SANE website, called 'What not to say to someone with a mental illness', which was based on the feedback members gave here. The aim of this blog is to hear from people with lived experience what's is and isn't helpful to say to someone with a mental illness and hopefully it will broaden the understanding of those without a lived experience.
The blog is yet to be published as we wanted to let those who are being quoted know. If you have been tagged and don't want you user name used in the blog, let me know 🙂
It’s a sad reality that people living with mental illness will hear inappropriate comments, sometimes at a time when they are struggling the most.
A glib, flippant or offhand comment – whether born of ignorance, awkwardness, or arrogance – can cut to the bone and leave people questioning their relationships and their place in the world.
So, what’s the worst thing you can say to someone living with a mental illness? Our SANE Forums members have 12 lines no one with a mental illness wants to hear.
There will always be someone who thinks that they have the answer to all the problems, but can’t see that they are the problem. I say, ‘don't you think I try? Because I certainly do not like what I am’.
As if we can. If we could get over it, we would! Who wants to be in chronic pain, grieving a child, or battling mental illness?
My symptoms aren’t just controlled by what I think or do. Why can't they understand that? If they knew how horrible it was to be me, to feel the way I do, they'd know that I'd do whatever I can to turn it around.
Even if it is all in your mind, that’s blaming and disabling rather than supportive. It ignores the fact that we’re not in control of our conscious mind as much as we'd like to believe, and our body holds memories, including those too painful for our minds to hold.
It’s funny how many people think mental illness is all in your head. I have always thought it resides in my heart, manifests in my stomach and clutters my brain.
It’s one of those things you really shouldn’t say to someone who is trying to reach out. To tell someone to stop whinging when they are trying to express something that’s making them uncomfortable is unhelpful to say the least.
‘If you toughen up and get out into the real world it will sort out your schizophrenia.’
‘If you weren’t such an introvert you wouldn’t have this problem.’
All these were said with the best of intentions. Mostly I don't get worried by ignorant observations or advice.
When I finally plucked up the courage to tell my sister, she said: ‘my nanny has bipolar and she's fine’. I didn't feel like there was anywhere for me to go from there and I regretted disclosing.
I recently tried to talk to my uncle for the first time about my DID. He said, ‘I had a weird phase when I was a teenager too. Everyone has that, to different levels.’
Sometimes people don't understand because they can't handle it.
This can feel like people are implying that I'm making stuff-up, particularly when I need to take time off work.
It infuriates me. What am I supposed to look like? Just because I look after myself to the best of my ability, doesn't mean people can read my thoughts.
It's annoying when someone flippantly says that. If only they knew how much pain is associated with what people experience with those illnesses!
No of course I haven't thought of trying anything that might actually help me! What affects me most is people thinking they have the answer and that I must be a moron not to figure it out.
Some people don't seem to understand that it’s the meds that make it possible for me to do anything in the first place. I'm on high doses of some pretty strong stuff, so I shudder to think how my body would react to that!
Like, what the? It makes me sound like I tell lies.
If only! Those are the things depression robs from me.
At the heart of this is a tendency to dismiss or discredit. What’s helpful is when someone acknowledges you and your experience, and says something that indicates they’re open to listening or learning more.
Thirty-eight years with depression, PTSD and BPD? It only gets worse. Stop lying to me in an effort to cheer me up. I'd rather hear, ‘that sucks, but I'll be here with you’.
When I had a breakdown, I would have loved someone to have helped by calling the doctor. It would have been lovely for them to drive me to the appointment and sit in the waiting room, gently patting my wrist and showing concern.
I would have liked friends to say, ‘come over to my house, stay the night, I will cook for you and you can just talk’.
It would have been so much easier to have this practical support and I believe I would have recovered much sooner.
One thing I wanted to hear was that I would get better, that it would be alright and that there was hope. I could not have endured the thought of being in that dark pit all my life. I wouldn't have climbed out without believing and without holding onto hope.
18-10-2017 11:12 AM
18-10-2017 11:12 AM
Fantastic @NikNik
I am so glad you are publishing this
Of course - I am sure the people who really need to know these things will never read it but it will help those who have these unhelpful commens said to them
Dec
18-10-2017 11:17 AM
18-10-2017 11:17 AM
Oh @NikNik I love what you have written here. If it was only that easy to get over it!!
18-10-2017 11:28 AM
18-10-2017 11:28 AM
Way to go @NikNik
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
SANE values diversity. We are committed to providing a safe, culturally appropriate, and inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.
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