Anyone started with the NDIS?

[CheerBear]

It's OK here too @eth. I was just venting here earlier which in itself is helpful for me I guess. Hope that's OK with you.

This afternoon I called the NDIA to ask for help and was referred on to the LAC so I then called them and will now wait to hear back. I'm not happy about having to ask the LAC as they're the ones who did the plan I need reviewed, but maybe they can help (I now say this with no hope anyone can help really).

I've just about had enough of it all.

[Former-Member]

Ah yes, the dreaded wait to hear back. Similar thing happening here for me today. I don't have any hope either, about anything, not that I ever have, so I know what that's like. Try to take care @CheerBear 

[CheerBear]

Thanks @Former-Member. It's a tough place to be and I'm sorry you feel it too.

Today during a brain smashing assessment the support coordinator asked me about my strengths. Determination was in my answer. I would like to think that what I lack in hope I can maybe make up for in that.

Hope you're as OK as you can be after a similar thing happened for you today.

[Former-Member]

Well this is more than I can say for myself, so you did good in my opinion @CheerBear 

[CheerBear]

I want to write something about how I could be wrong but I'm thinking it has taken you quite some determination to get through all you have @Former-Member. I feel like that would miss the point that perhaps that determination/fight is pretty exhausted for you at the moment, so I'm reluctant to go there.

Hearing you though and hoping it helps a bit to have a place to share your frustration and know you're not alone in feeling that it really does suck sometimes.

[Former-Member]

Determination is equal to the forced survival I endured and still endure in my brain, so is existing outright because none were or are my choice. But thank you, I appreciate that you actually acknowledge what I've been through, still am going through and the impact instead of just assuming I'm some poster child for surviving abuse and trauma like most people have. 

I think I meant to say "I'm not able to identify anything besides sh*t about myself because of my negative self-concept". 

[CheerBear]

That sounds like a truly awful place to be @Former-Member. For what it is worth I am (we here are) listening to and hearing you.

[Former-Member]

It is, but its the only place I've ever been in. So I'm used to it, and its hard to care when it can't be changed. Truly. GP thought NDIS would help, but she thought the same about everything else too. Its her job to have hope. Why, I don't know, because there's no reason to. This was literally last resort, I've got nothing now.

[eth]

Venting here is totally ok @CheerBear  that's partly why I started this thread in the first place.  I've done more than my share of it too over the exactly 2 years since I first applied.  

@Former-Member  I think you said you have a disability advocate - have you told her about all the problems you've had with NDIS?  Have you asked your GP for more help with it?

The other thing this thread helps with is reading back what's been happening - sometimes I'd get so frustrated and demoralised that I couldn't remember things like chunks of conversations had on the topic and it really helped to have journaled it here.

Best wishes to you both.

[Former-Member]

Yes, I have and they can't help, they just listen @eth