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Re: Ask Anything Monday!

Thabk you for those words. Just came home from 26 day treatment program and i feel energised. For a while I got lost in my MI. I'm not 'cured'. I'm now just able to remember other parts of me.
I have found this experience a bit like watching a baby / child grow and develop.
What do I like to do that makes me smile? What new foods might I discover (new medication has altered my taste buds). What local activity might I join that will be a 'gentle / easy' group for me to enter and join.
I am healing and getting to know the old and the new me every day. I'm not so isolated and scared any more.
Good days / moments & not so good days.
Thats life. I'm part of it and I hope your journey is as interesting as mine.
With love.

Re: Ask Anything Monday!

Hello welcome to the forum ,

that is a good question , I asked my husband who said that  he really struggled with this, in fact he  still really struggle with it.

He feels he had just depression before but now he feels worse with anxiety, scared, etc

Re: Ask Anything Monday!

I am not sure that I can contribute anything useful to this discussion, although I would like to do so.

 

Shaz51 spoke of her husband having felt "he had just depression before but now he feels worse with anxiety, scared, etc." That is precisely the way I feel now; my depression might be somewhat less than it was, but in the last 18 months my anxiety has gone through the roof.

 

And this is partly because (aged 54) I am doing things now which, in the years when I was almost paralysed by my depression, I did not do. These days I force myself to have a social life; I usually refuse those who want me to go back to the working-from-home isolation which played (I now discern) such a big part in worsening my MI to begin with.

 

The only thing I can compare it to is the use of a muscle that over the years has become atrophied. But there comes a time when one really has to use the muscle in question. One can't pretend it isn't there.

Re: Ask Anything Monday!

Hi @Robertmelbourne

yes my husband is 56 years old and he feels like he is getting worse

From Step up re: A A Monday

Hi i just wanted to say thanks for your replies to my question this week about accepting my MI diagnosis. It has been very helpful and comforting to know I am not alone in our struggle, so thank you all so much! This is the first time i have connected with people which are experiencing similar stuff and i have been honest with myself and in my replies to you all. I have learnt some new ways of thinking about having a MI from you which i never thought of like; seeing there are other parts of me, instead of thinking i am just all Mental Illness which i am not now. i guess i was consumed by MI when i was in the acute phase, but i have come along way now and can start to let in something i used to enjoy, like Tai Chi which i gave up when i became ill. Also, the other point which also helped was being aware of labels which happens by those who dont understand MI and were not the people i wanted them to be, so being discerning about who i trust about personal stuff will be important as i get well. Finally, accepting mental illness for me, if i get down to the nitty griity is: I am scared, i am scared if i can trust myself to take care of me? Self responsibility means, i am responsible for me and its scary, to choose to be present in my life, for me! its scary because self responsibility means speaking up for me if i need to, taking my medication on time, eating well, getting sleep, drinking water, going for walks, whatever i need to do for me to get well. There have been lots of similar experiences i have seen in your stories which i have experienced and your experiences have helped me feel i am not so alone and to know even if i am scared, taking it really slow, do small things will add up & It will get easier and less scary, thank you all! Bye & i look forward to more discussions with you.Catch ya! Step up. 🙂 

Former-Member
Not applicable

Re: Ask Anything Monday!

 

Re: Ask Anything Monday!

I'm a little confused with this thread so I apologise if I'm not responding to the most recent question. I wanted to reply to the question about accepting your diagnosis.

It seems to me that  the answer to this really differs, depending on what your diagnosis is. For example, I have a secondary dx of PTSD. This, to me, is a bunch of symptoms and I can imagine a time when I no longer have those symptoms so the dx is something I have, not something I am. 

My primary dx of DID, which I am still struggling to accept, seems to be different in that it says that the person I believe myself to be, is not who I really am. This is much harder. I don't know but I wonder if personality disorder dx are similar in this way? I cannot just say, I am me and I have this illness, when the illness criteria itself say I am wrong about who I am.

This is one of my struggles.

@Former-Member

I agree with you, and I also have both PTSD and DID.  I understand DID is classed as a dissociative disorder, rather than a personality disorder so personally I feel it is important to understand that distinction.  It used to be called Multiple Personality Disorder but was changed.  I'm glad it was changed!

I wasn't alarmed by my dx of DID, I'd already worked most of it out, although it did take a while for it to sink in because it does put you into a more 'complex' category of mental illness.  It wasn't the DID that put me out of my comfort zone, but moving into psychiatric therapy and having to see someone 'new'.  Therapy can be 'normal' for PTSD (as far as who you see, ie Psychologist) but DID is seen as a 'speciality' psychiatric counselling type thing.  Also people generally arn't too concerned if you have PTSD, but DID is something phenomenal - plus there are those psychiatrists and other medical doctors who simply don't believe in it.  Tell people you're hearing voices really, unfortunately, can freak them out.

I want you to know you are you, and your dx of DID is no different from any other mental illness as far as it being an illness.  There is no being wrong about who you are.  Dissociation is protective at a time when you needed that, it is what helped us cope.

I have learnt to view DID the same as PTSD, and also Major Depression - they are all illnesses.  I am still me, my treament is a bit more but certainly not impossible.  Focusing on internal communication, being understanding and gentle on yourself and your Alters, knowing that treatment can take time and also learning as much about DID as you can - these all make a difference.

But DID, having a dx, can also bring relief - it 'explains' things.  Decreases the confusion.  Something now makes sense.  If you have previously been diagnosed with other illnesses like BPD or Schizophrenia (or nothing that made sense) and had the wrong treatment, then moving into the correct treatment will make a world of difference.

I don't struggle with DID, I accept it and understand it's purpose.  It's taken me a few years but my Alters are becoming better known to me and I've found the ways they each help me, but also have the capacity to harm me.  That's why inner communication becomes so important, to work with your Alters and understand them.

It's both simple and complex to me.  Maybe simple for me to understand why I 'have' DID, but complex as in time to be in treatment.  I'm trying to simplify it because the textbook thing about DID makes it too complex and I think that frightens people too much.  I'm still me, I'm just fractured and to me that's OK.

You're not alone.

JJ.

 

Re: Ask Anything Monday!

@JackJane @Former-Member

Hey guys. I've always been interested in DID. Would it be ok if I asked what it's like for you? I get that my illness (bipolar) means that my moods can be completely different but I don't fully understand how your personality can change (am I even getting this right?). I hope this makes sense and I'm not being rude. 

Re: Ask Anything Monday!

Hi @mrkotter

What does DID stand for?

Re: Ask Anything Monday!

Dissociative Identity Disorder