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chibam
Senior Contributor

Is This A Step Backwards For Lived Experiance Voices?

A couple days ago, I posted about the recently released report about the harms done by the Victorian Mental Health system. (https://www.livedexperiencejustice.au/s/Not-Before-Time-State-Acknowledgement-of-Harm-2023-FINAL-REL..., for any who are interested.)

Further research has led me to discover that, apparently, the Victorian government actually tried to suppress or water down this report before it's release the other day.
https://www.google.com.au/search?q=mental+health+report+%22tried+to+gag%22&cr=countryAU&tbs=ctr:coun...
https://web.archive.org/web/20230615193923/https://www.thechronicle.com.au/news/victoria/page/2?nk=0...

The report's authors apparently pushed ahead with it's publication, against the wishes of the government, and apparently many officials are livid that it's actually gone public.

Unfortunately, I know only as much as I can glean from the leading blurbs about the news articles discussing this situation, as the articles themselves are behind a paywall and I've been unable to read them.

It's easy to considder this a big win. "The small underdog advocate for the victims of the system evades the big, bad government and the might old guard of the mental health system, to the get the victims' message out to the mainstream media. David conquers Goliath at last." But I can't help but worry that that might be a shortsighted view of what's just happened.

Supposedly, before releasing this report, the lead author was firmly warned by the powers-that-be that if he published this report without making the alterations they wanted, he would never be aloud to consult on any government mental health project again. That, in itself, is tragic. But I worry that the impacts may spread further then this one whistleblower-turned-sacrificial-lamb.

Will this episode change the government's view of lived experiance people? Now that they've seen we can be volatile, uncontrollable, and prone to using public platforms to announce things they don't want to hear, will they quietly try to weaken the various lived experiance roles in policy formation, that have been promised to us over the last few years? To gradually sweep our voices into the background again? Or will it lead to them deliberately packing their "lived experiance" committees with "company men", who may have some degree of lived experiance, but who are moreso defined by their willingness to parrot the exact same attitudes that the government "encourages" them to promote, rather then expressing what the community is genuinely saying? We all know that that sort of thing has happened before.

I can't help but worry that we're yet to see the full pricetag for what's happened this week. I suspect the cost will be heavier then any of us were prepared for.

 

Tagging you, @Historylover , because you were interested in that other thread.

9 REPLIES 9

Re: Is This A Step Backwards For Lived Experiance Voices?

I watched a film last night, @chibam. It was called I, Daniel and documented a short journey through the lives of two people interacting with a Centrelink-type organization in Newcastle-upon-Tyne—applicable in any country. I watched as it depicted my own complaints about these departments—the indifference to the effects on people's lives, health, relationships, futures, the time wasting and costs to the individuals and governments... It left me drained emotionally. I didn't read the credits but glimpsed a line or two that suggested it may have been a true story. If not, it was a true depiction of how lives are wasted.

 

Perhaps they should make one on the mental health system, the medical system, the education system, the political system, the banking system, the legal system, the prison system...

 

I don't have any fight left in me, @chibam.  I hope you're doing alright.

Re: Is This A Step Backwards For Lived Experiance Voices?

I'm lost @Historylover . Lost, tired, and irritable. I think I may have fouled up yesterday. Acted a bit pushy towards people in authority, regarding something that, by now, I should have learned to be patient with. I have such trouble spotting the boundaries between what is fair and what is indecent, when it comes to how others treat me. Revelations like what I read yesterday has got me a bit paranoid, I think, in terms of the powers-that-be being on a quest to sweep me and my perspective under the rug.

I'm sure there's some element of truth to it, but I'm probably exaggerating the extent of the conspiracy, in my own mind.

I just don't know how to see the future now, with this latest development. Is there any hope that things will get better? Or has the been taken away now? Was it never really there to begin with?

I feel like one of those movie characters who is lost in the dessert; exhausted, dying of thirst. They rejoice upon spotting an oasis in the haze ahead, only to quickly discover it was all just a mirage.

That's me. The promises of hope ahead don't seem to have any substance anymore. My eyes say there might be a brighter future ahead. But my mind cautions me against getting my hopes up. It's probably just another mirage.

Re: Is This A Step Backwards For Lived Experiance Voices?

Thank you for sharing those links.  @chibam It is important to know.

 

Making the best of a bad deal ... digging deep into my own resources ... is my strategy I guess.

 

Take Care both of you .... @Historylover 

Re: Is This A Step Backwards For Lived Experiance Voices?

I'm hearing that you are afraid that all of this mess will be swept under the rug—is that what you're saying, and you feel that it will be lost if you don't keep fighting for it to correct?

 

@chibam, I don't know what to say. You are right in everything you say but any change in the system will be such a long time coming, and even longer in coming to any particular person, that we all have to realize that the ball is in our own court. 

 

@chibam, what are you doing to better your situation yourself? I'm not speaking with any authority here as, as you know, my situation is a mess. However, I try to make my situation the best it can be, every day. I don't know how long I can continue on this quest of self-improvement, but it is rewarding; I can lose myself in it and forget my problems for a while. The thought of mixing with people is not pleasing to me, at the moment. Where does one find kindred, non-exploitative spirits in the real world?

 

I, too, want to know who will help me? I love helping others, but none in the real world will help me. They are all exploitative predators and I don't know how to change people. I was told that I can't change people, I can only change myself. I've done that and my situation remains the same. I know I am the best person I can be, but why isn't that enough? 

 

@chibam, my friend, don't wait for change, we have to make our own. What can you do for yourself that will start you on a better, more hopeful path? 

 

 

 

Re: Is This A Step Backwards For Lived Experiance Voices?

There's nothing that can be done, @Historylover . Much like you, I need to be united with my true family, and until the system sets up a program to perform this function, I am at a loss for what more can be done.

I have worn myself down to the bone trying to appease others; to ingratiate myself with them. I've distorted my image terribly trying to do so. But because I've never been able to figure out what they want, I've never been able to satisfy them. And in any event, every step you take down that road feels more wrong and self-defeating then the last. You start to become the sort of person who disgusts you, trying to appease them.

I've reached the limits of trying to figure out what I can do to get out of this nightmare. Some prison cells are just too ingeniously built to be broken out of from the inside, even by an ingenious prisoner, which I am certainly not anyway. Release can only come from those on the outside.

Re: Is This A Step Backwards For Lived Experiance Voices?

@chibam, you're going to be peeved, and possibly disillusioned with me for saying this, but you're looking for 'family' in all the wrong places.

 

As I've just alluded to in a post to @Appleblossom—we all already have a family and a tribe of our own, but our relationships are all alienated, scattered, disowned and fragmented. As a result, we have no sense of belonging, cohesion—no safe haven. We will never replace our sense of belonging (to our birth tribe) with a sense of belonging anywhere else. When we try to fit in with other substitute families, we give them power over us. They will never let us in—and, to be honest, I don't want in. I prefer my own family's quirks. Modern society has broken our family ties and we are all the poorer for it. Family is KING! We just all have to learn to get along and to respect each other—to share a common purpose.

 

@chibam, I acknowledge that your situation may not be suited to the above...you may not have a tribe/relatives nearby, and as an only child (?) may not have family nearby. If so, I apologize, but I just wish people realized the value of family and the importance of working through family problems which, in many instances, are based on misunderstandings. It all just makes me sad because so many people are suffering and lost.❣️

Re: Is This A Step Backwards For Lived Experiance Voices?

@Historylover, I think we're just going to have to agree to disagree in that regard. My experiance has lead me to believe that it is only a very minute portion of the population who are fortunate enough to be born into their proper families. The rest of us have to hope to be gathered up into their company.

Well, it's more complicated then that, but I don't really feel like going in to one of my lengthy posts ATM. It's been a long day.

In terms of giving others power over us, that's not inherantly a bad thing; in fact, it can be quite wonderful. The trick is, insuring that it's the right 'master' who gets control; one who's aspirations are in-line with your own.

I've come to understand that I'm not an emperor at heart; I'm a peasant, a dutiful servant, when I'm at my best. That's not a shameful or pitiful thing. There is a sort of goodness in serving with honor. A lot of great stories have heroes who are humble peasants.

Re: Is This A Step Backwards For Lived Experience Voices?

I had responded to your post where you were upset that you may have 'fouled up'. Well, @chibam, now I have overstepped and I'm upset. I guess your situation upsets me and I'm trying to find the magic potion to fix things for you. Sorry. 

Re: Is This A Step Backwards For Lived Experience Voices?

No, please don't be upset, @Historylover . No offense was taken. 🙂🤗

I'm truly grateful that you want to find "the magic potion" to fix things for me, and I'm sorry if I reacted to your well-wishes poorly. As I mentioned, yesterday was a long & busy day, so I may have been a bit blunt with you. Sorry about that.