A long rave

[Mazarita]

Hi @Sophia1 glad the sky is blue where you are, even if you are not able to walk at the moment. That will change with time and hopefully the sky will be blue then too. 

@eth, I did sleep last night, pretty much the same long stretch of it as you: went to bed at 9.30pm and only just woke up recently about 8.30. Only two short breaks. Feeling a bit weird this morning though because I missed two of my mood stabiliser doses yesterday (ran out and couldn't drag myself out to get it). C has just gone off to the chemist to bring it home for me. I feel a bit dizzy. Aside from that, okay, just still tired at the moment and waking up slowly. How are you feeling after being home a couple of days?

[Sophia1]

@Mazarita were you aware that you had missed them yesterday...or realised from symptoms today? I believe that some chemists will deliver if inable to get there...

@eth are you about?

sounds like a lovely evening with the fish and chips....We had the same....home made...fresh fish from the fishmongers here which I freeze some of...not as nice as eating on the day...far more economical though...glass of white wine...

we watched a film on netflix based on a true story about an american footballer who played for texas...he played through severe pain in his leg which turned out to be a tumour...he had his leg amputated to his hip....survived another eighteen months...was told could not use crutches so soon after operation...he walked into the stadium ahead of his team at the final on crutches....balanced on one crutch with the other in the air to the roar of the crowd...

needless to say I wept all of the way through...felt very deflated and possibly even more depressed when I went to bed..still feeling the aftermath now....so probably need to go back to the side splitting hilarious....

have either of you ever seen the australian series "Rake".?...we both crack up when we watch it....

I am looking out of the office window where the computer is naturally....duh...the cows are near our neighbouring fence...will miss them when we move...

are you wanting to talk a little more about your trip eth...or are you feeling that you want to keep that private?

[eth]

Hi @Sophia1  maybe you can just sit in the sunshine outside and look at the plants and birds around you.  Hope you start to feel physically stronger soon.  

Sorry to hear you missed your meds yesterday @Mazarita.   Hopefully the dizziness will pass once you have them today.  Be gentle with yourself in the meanwhile.

I'm feeling like I'm really tired after 2 weeks of heightened adrenalin whilst travelling and staying in other people's places.  The first week it was bed very early and up at 5am with my sister (her cafe opens at 6.30)  then the first half of the 2nd week I stayed with extremely nocturnal people, then the camping trip where I was up before dawn every day just because of the beautiful dawns ......... so something of a carousel of sleep patterns and med times.  Starting to get back to my normal routine now after a few days at home.  And very glad I didn't get hypomanic this time.  Mum has commented on how little she saw me while I was in Brisbane, but actually we had her overnight and then spent a whole day with her at a&e with super high then extra low blood pressure, and also visited her another day - I was only there for 5 days so I feel no guilt about it.  I'm keeping some boundaries in my relationship with her after my reaction to a week alone with her last year.  I managed not to be alone with her too.

The festival was fantastic and my close friend stayed with me nearly the whole time so I handled the crowds and mostly felt safe.  Lots of indigenous music, some traditional and some modern, gifts for bro and sil from the art area, and very relaxing days in our camp with 2 close female friends and another younger woman with her 2 young daughters.  And my friend catered so well that we didn't have to buy food or even drinks from the festival stalls.  All for $50.

[Faith-and-Hope]

Morning @eth @Mazarita @Sophia1 @greenpea @Zoe7 @outlander @CheerBear @The-red-centaur @Maggie  ..... please let me know if I have missed anybody .... or if anybody else is here .....

👋☕️💕

[Mazarita]

@Sophia1, I knew I was missing the meds yesterday but was in such a low energy state I just couldn't get myself out to get them. I was in nightie and dressing gown all day yesterday. Good to know some chemists will deliver under such circumstances. There was an extra complication with it though, that I had to ring the chemist about this morning. The script said it wasn't to be refilled until 22 June (because he wrote the script when I was on a quarter of the dose). So that need to be sorted too before C could collect the meds. Anyway, will really try to avoid this in the future. Doesn't happen very often at all.

@eth, I'm seeing psychiatrist today in the afternoon. This may be the start of the new meds change of one anti-psychotic to another. Stage two of medication changes. I anticipate that this one will be quicker and less disruptive than the first.

I recognise that post-travel adrenaline recovery. I get it every time I get back from down south and it can head me towards depression (bipolar swing). On the other hand, I would not be able to sustain the pace I go at when I'm down south, so it's hard to avoid. Even if I do get kind of depressed after a trip, it's still great to be able to relax again.

So good that your friend came through with such dazzling colours on the catering and care of you. 🙂

[eth]

@Sophia1 I really like Rake too - he's such a character.  Haven't seen it for a while.  Is it back on now?  I was probably typing my last post at the same time as you were.  It has some more details of my trip.  I'll name some of the bands I saw in my next post.

@Mazarita I hope your psychiatrist ap't goes well and that the next new med is gentle and quicker to stabilize for you.

[Mazarita]

@eth, just a heads up... while you were away the delayed email notifications problem has got a lot worse. Often I'm getting email notifications up to 8 hours after the message was posted! I've let @Former-Member know about this on the tech thread. It's a serious issue which means I'm now constantly hanging on the onsite notifications page, refreshing it repeatedly, when engaged in real time chat. Worth knowing if we rely on email notification for chat. 

[Sophia1]

@Mazarita

times like that with medications can be tricky...chemists have to be very careful of course...some have as much personality as blank piece of paper...

changeover in another medication planned...sounds as though you are well prepared and ready to manage temporary symptoms if any....makes it much easier for you...will this be the last change? Are you on medication for your crohns disease? sorry if I have this wrong...

@eth

that was a mammoth journey that you went on.....at a time where your energy was mostly depleted if not completely

....change of scenery...in company of others...travelling...arising at dawn...alternating with night owls

....visiting and spending time with a mum with whom you have to tread on eggshells around (I thought you were speaking of my mother for a moment  there)...

huge gatherings....wonderful experience.....great company  and food...

you might even feel as though you have been whisked up in a whirlwind....reminded me of my two month  visit to UK last year....seems like forever since I was there...the first month was organised by everyone around their families etc....lovely of them to put me up...did get to visit some places that I wanted to...other family members not the case...the whole month was a huge whirlwind for me...I still believe that I was also jet lagged the whole time that I was there....

Sorry about the rave.....you have probably  stopped reading by now....

Just wondering if it might be a good idea to put off the NDIS preparation for a few more days...just allow yourself to come back and settle where you are at now....you have done so much in a month...

would love to sit in son...we are high up and wind cool...plus can't sit for too long...

enjoy whatever you both decide to do today...

[Sophia1]

sorry @Mazarita @eth

this is where I get confused further...my responses are so long...you both write briefly...

my bell thing...notifications? doesn't work most of the time....

yes I just keep on refreshing...

having worked with large corporations for most of my career...with any technology update or implementation there are always ongoing glitches for a while after...

[Mazarita]

@Sophia1, thanks. Yes, it has helped since the beginning that I have been prepared for the change and likely side effects of it (although not really known what exactly they might be until actually experienced). Also, my psychiatrist has encouraged me to research the meds he was thinking of for me, and the participate in deciding which might be best. This gives me much more of a sense of being in control of what's happening, even when I feel somewhat out of control with the symptoms (if that makes sense). I appreciate my psychiatrist very much. Been seeing him for about four years now.