A long rave

[Mazarita]

I am sad for you too, @PeppiPatty.

But I can imagine a relief from stress too.

Hugs.

[eth]

Hi @CheerBear sorry to hear that you've had NDIA mail that's sent you even lower.  I totally know the feeling.  Hoping your quiet day is helping soothe you.  I hear you about letting your support people do the leg work for now.  I didn't have any support the first 6 months of trying to get on but then my sil got involved with me and things progressed - first the supporting evidence hoop - knocked back - then a request for review of their decision (internal review) - knocked back - then appealed through the AAT (Administrative Appeals Tribunal) at which time we got a Disability Advocate (free in every state) who also got a legal aid lawyer for me.  Because I had recently moved from the NT to NSW I had no MH support people to rely on - I really hope they do a good job for you.    All of which is to say I'm here for you, I've been there, and if there's any way I can support you do please let me know.

@Mazarita Good on you for getting stuck into your washing today.  I actually made it into the shower and washed my hair.  Sleeping in day clothes and not changing for 3 or 4 days is also something I do, all too often.  Hope you're having a nice visit with your friend now.

I found out my PHaMs worker has been cancelled for good.  Her boss was meant to communicate with sil before he axed her.  Sil has had to ring him from her work to have it confirmed.  So push comes to shove - I really need to find new supports.  I have a coordinator of supports (NDIS funded) now but am finding it a frustratingly slow process.   So in a different way CB I am trying to let go and let the CoS do the job.

My psychologist is also sick this week so that's cancelled for tomorrow too.

In the meanwhile my needs fall back on my family in a way that has been demonstrated to be unsustainable.

This seems to be the other shoe dropping that I've been anticipating and not in a good way.

[Mazarita]

Hi @eth, it really sucks that your old Phams organisation has been so extremely unhelpful at this point. May it be only a small gap in support worker services before the next ones are in place. It seems it won't be long that sil and bro need to help in small ways for you just now. I'm hoping they will be understanding. Hugs for needing to seek their help. I know how much you want to free of these worries.

I was at the bus stop near my friend's place when I posted to you, @PeppiPatty. Still thinking about your big news. Hoping that all works out for the best. 

Today I was with my friend for about 2 hours. She picked me up and I caught the last bus home. As anticipated, it was great to be out of the flat again and we had a pleasant time together.

So relieved I got some washing done earlier. Tomorrow for a shower, and maybe some more washing (there's still 2-3 loads to do).

Tomorrow night C and I may be getting off the Coast to a country town about an hour from here. We've been invited to another art opening (at the same gallery as last time). If we make it, we will see a friend we have in that town, and get to see again his friend, the gallery curator, who we met last time.

I'm hoping we make it but I'm not going to beat myself up if I can't bring myself to do it when it gets closer to the time. When I feel as down and fragile as I do just now, I sometimes get too anxious for socialising, or too depressed for an event like that, where I feel the need to be more switched on. Keep fingers crossed for us!

Hi to anyone around, hope your evening flows smoothly. 

[Mazarita]

Hi @CheerBear, feeling you under the like button. Wondering how your day has panned out. Hoping the evening is kind. 

[CheerBear]

Hey @Mazarita. That's really exciting about possibly heading out tomorrow night, though understanding how big that may be especially at the moment. I have my fingers crossed for you.

At 3pm my afternoon always takes a more active turn Maz, which kind of makes me get out of any rut I have been in during the day. We had a school mum and her plus three over for a little while this afternoon. It was loud and hectic but the kids all really enjoyed it. I have a homemade vegetable pie in the oven and am enjoying that I won't have a mad dinner rush tonight, so it should be fairly cruisy from here (there is also a show the kids want to watch on later that I can use as an "if you want to watch it you need to..." kind of 'incentive' haha!).

Better head back out though. I swear I say the word "crusiy" and a moment later something chaotic always happens! Hope your evening goes well ❤

Hugs for you @PeppiPatty.

@eth sorry to hear things aren't working out so well at the moment. It can be so unsettling when supports are wonky. Thank you heaps for your understanding and for sharing your journey as you do. I really appreciate that you do that and your support ❤

Catch you all later ☺

[PeppiPatty]

you know girls it's a huge relief.I have a tendency to push myelf to put myself in huge stress. I'm sorry but will write again in a couple of hours about it.

How are you @eth & @CheerBear 

@Mazarita @outlander@Appleblossom 

xx 

[outlander]

evening everyone @PeppiPatty @eth @CheerBear @Mazarita @Exoplanet

hoping the day has treated you reasonably well

hoping your going ok @Bunniekins thinking of you

[Mazarita]

Hi @outlander, I'm here in ad breaks of Seinfeld. It's been a relatively good day here. Hope yours has been okay. 

[CheerBear]

Great to hear you have some feeling of relief with your decision @PeppiPatty.

Thanks @outlander. Hoping your day has been OK or better than OK also ❤

[outlander]

its been an 'eh' day but ill take that its better than bad @Mazarita @CheerBear

Mazy- im glad your days been ok and hoping your enjoying Seinfield. im watching the big bang therory atm.

CB- i seen your loveley blanket youve started making. it is a shame you cant send it through the screen to me. i would love one of your blankets!