I want to engage with the community where I live!!!

[Whatsagoodname]

I have schizophrenia, but I don’t want the label to hold me back… I’ve posted a few times and got some positive responses which was nice. 

as the title suggests I want to engage with my local community, but don’t have hindsight to see how that will play out.. like there’s a group on fb that shares what’s going on with that community.

I had a fall out from a group of friends after 7 years, my diagnosis played a part in it. Which is shameful. My question is cause I feel a little lost, would it be appropriate to post something on fb that shows who I am? Anyone have a similar experience? Anyone try that… I’m sort of pumping myself up to do it but psych advised earlier it is not a good idea to broadcast that, esp on social media…

I wish things were different… hoping others could share?

[tyme]

Hi there @Whatsagoodname ,

Great to see you again here on the forums. It's lovely to hear that you have felt responses in the past were helpful.

In terms of your post, you mentioned you wanted to post on social media about who you are. I'm curious to know what you mean by this? Do you mean in terms of your mental health? Or your likes and dislikes?

I guess we can't say whether you should or shouldn't post, but we can share our stories and experiences. What you ultimately do is in your control.

As for me, I don't have FB, instagram, snap chat or anything. In a way, I want to protect myself from those platforms. I have found an understanding community here whereby I can share my mental health ups and downs. I find SANE forums are sufficient for me.

What sort of engagement in the community are you looking for? Like people to hang out with in real life?

[Appleblossom]

@Whatsagoodname 

Welcome back to the forum.

Engaging with community is great, but I am still finding it tricky regarding disclosing of serious mental health issues.  I also have not wanted to hide the many issues I have experienced as they all make us who we are.  I am not good at choosing who to disclose what to, and sometimes thiings bubble out.  Sometimes people respons well and other times not.  Even yesterday I had a person tease me for being cuckoo and having her finger around her head.  So for all the media, it is still not easy.  At least this time, I was not hurt by her behaviour, as it just showed her bad form.

With posting on social media, I would be careful, sometimes preferences become obvious because of people we follow or groups we join. 

At least on here we can say many things that need to be said.

Take care.

[Whatsagoodname]

You bring up some good points @tyme I at the end of the day, just want to share how I feel. Like I’m a human like any other person, at the moment not feeling like it, just wanna get out my frustrations. I think this will allow me to feel better, and the stigma to be put on the side, would be a good picture!

I don’t think I will share at this point. More awareness would be great, just want to enjoy my life… which isn’t the case for me it seems 🤷🏻

[Whatsagoodname]

@Appleblossom Sorry to hear that, but you’re quite right it is showing their negative side as you said. I just have no emotions to get across as they are just frustrations but I guess the world isn’t a fair place… I’m ok in saying this, just feels like when I got first diagnosed and I thought the worst, seems like the old me knew what was meant to come, but still here… hoping for a miracle lol… hope you find some good in your day!

[Appleblossom]

Thanks @Whatsagoodname 

I have had good things in the last few days. I am secure, eat good food and slowly, slowly finding a few friends.  As a child I was exposed to a lot of trauma. My 20 year old my brother phoned me and told me that Schizophrenia was my father dx but dad had already passed.  Then looking in state ward file, I saw they Dx mother that way as well.  So understanding what it actually meant has occupied a lot of my time over the years and surviving.  Good on you for not letting it hold you back.  My approach was to be analytical but I also loved my family.  Not big on feeling words but definitely am human and have them ... was unsure when people talked about following one's gut ... or gut instinct ... probably had too much trauma and busy regulating it ... long before DBT was invented .... not a bot. lol

Good luck

[PeppyPatti]

@Whatsagoodname 

@Appleblossom 

@tyme @Stout 

Hi great message actually 

It's one of the better questions iv seen. 

My ex-husband has schizophrenia and he's in hospital because he decided to branch out on social media to meet a lady 

He needs to take responsibility for - 

His behaviour and not using his carers and friends to help him stay safe. 

I beg you to be mindful. 

This is not your fault in having a diagnosis. I also have issues which are not my fault but I need to get help. 

[Stout]

@PeppyPatti 🙌

[tyme]

Hey @Whatsagoodname ,

Did you watch the webinar on Wednesday? I wonder if it will be of any interest to you?

https://saneforums.org/t5/Special-Events/RECORDING-Mental-Health-Recovery-Webinar-2-Dear-Psychosis/m...