Lived Experience Forum

[maddison]

Content/trigger warning

Hi @Former-Member 

How are things with you?

Wanted to reach out & touch base. I understand it is probably difficult for you. Please feel free to vent! Your situation must be overwhelming. Very lucky to have 9 month old grandson (sorry🙂edit) 💗💗💗 I know you already know! 💜

(Having editing problems! Not sure why trigger warning box is there🙂)

[Former-Member]

Hi @maddison 

Thanks for tbe message and sorry for the late response.

I'm just taking each day at a time.

Just the pain is becoming intolerable and the only way to get relief is go into hospital and get drugged so much you might not as well br alive

So each day is a challenge but as I've explained to my partner I'm not sure how much longer I can do this .

The support is helpful and I appreciate it but it doesn't make the pain go away

[tyme]

I cannot even being to imagine the effect chronic pain on your life, your health, your energy, your mental health @Former-Member .

I'm so sorry to hear how bad it is. I hope you will find answers and some sort of relief from the pain so that you can spend quality time with your grandson.

Thinking of you,

tyme

[Former-Member]

Thank you for you thoughts

[Amity77]

• I too have the same problem as you. I had surgery in February on all my tendons in my right foot as I was struggling to walk. 4 months on and I still cannot walk. I have severe pain that is 15 times worse than before surgery. I keep getting sent to physio and am up to the 4th one as nothing is helping me to walk again or get rid of the severe pain in my foot. I wish I never had the surgery now as at least painkillers numbed the pain I was in. Nothing works now and having pain for months has totally broken me. I had the police turn up today for a welfare check. I have told all of the medical staff I have seen the last few months that I cannot handle the pain anymore. 
  
  
• are you on a particular medication to make your pain tolerable? I keep getting told I can walk once the pain is under control. 

[Former-Member]

Hi there sorry to hear your in so much pain also

It is very hard to deal with and doctors and physics tell you it will improve and I hope for you it does.

I'm on the highest dose opiods allowed plus max dose of nerve tabs and it eases the pain a bit but barely tolerable.

I'm off to another pain clinic when they triage my referall to see how urgent I am.

It's funny how they triage you without even talking to you but that's the system for you.

Just try and find something to try and keep your mind of the pain if you can I find it does help a little but like you I'm at the end of the line of being able to cope with the pain

[tyme]

Hi @Former-Member ,

Long time no see! How are you managing? Have you had any success with pain relief? 

I was passing through and wanted to reach out to you to make sure you are okay.

Thinking of you,

tyme

[Former-Member]

Hi @tyme no luck as yet but I have been referred to the john hunter hospital pain clinic.

But that can take up to a month to get a spot 

So just suffering along with the rest of us

Hope you are well and thanks for thinking about me 

[tyme]

I hope you get in to see the specialist soon @Former-Member . Is there a chance they schedule you in earlier if there is a cancellation?

[Former-Member]

They said if any cancellation the next person on the list does not take the spot.

It goes on who needs the treatment most which I suppose is good in on e way but not so if your not the one 

But fingers crossed to get in earlier as I did tell them I'm not sure how much longer I can deal with it